Reaching the 'New Normal': A Wish for Breast Cancer Patients in Palliative Care

Authors

  • Kristiani Sitorus Faculty of Nursing, Universitas Indonesia, Depok, West Java, Indonesia
  • Enie Novieastari Faculty of Nursing, Universitas Indonesia, Depok, West Java, Indonesia
  • Tuti Nuraini Faculty of Nursing, Universitas Indonesia, Depok, West Java, Indonesia

DOI:

https://doi.org/10.31965/infokes.Vol23.Iss1.1830

Keywords:

Breast Cancer, Palliative Care, Unmet Needs

Abstract

More than 80% of breast cancer patients in Indonesia who are diagnosed are at an advanced stage. Advanced cancer treatment is directed at palliative care from the beginning of diagnosis.  Patients undergoing palliative care must adjust to the changing needs that occur during palliative care in line with the decline in the condition of the disease and the impact of its treatment. It can affect changes in the patient's daily life patterns. This study was conducted to explore the unmet needs of breast cancer patients during palliative care in the context of the culture and healthcare system in Indonesia. This study utilized a descriptive qualitative phenomenological method. In-depth interviews with semi-structured interview guidelines were conducted on 14 breast cancer patients undergoing palliative care. The thematic analysis uses the Colaizzi approach. The results of this study obtained three specific themes of unmet needs in the study participants: 1) the need to achieve the 'New Normal' to return to activities with enthusiasm and hope, 2) the need for appreciation and recognition, and 3) Support to overcome the fear of death and the uncertainty of the future. Breast cancer patients want to return to their activities with enthusiasm and hope despite facing physical limitations and emotional challenges. In conclusion, achieving the 'New Normal' is an important aspect of this adjustment process, which involves physical, emotional, social, and spiritual support. This finding differs from previous research, where other publications did not explicitly mention the need to achieve the 'New Normal'. Therefore, the role of nurses in addressing unmet needs, both in the context of the 'New Normal' and more generally, is crucial in palliative care for breast cancer patients. This support enhances the patient's quality of life and gives greater meaning to the remainder of their lives.       

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References

Afolabi, O. A., Nkhoma, K., Maddocks, M., & Harding, R. (2021). What constitutes a palliative care need in people with serious illnesses across Africa? A mixed-methods systematic review of the concept and evidence. Palliative medicine, 35(6), 1052–1070. https://doi.org/10.1177/02692163211008784

Agustini, N. L. P. I. B., Satriani, N. L. A., Dewi, N. P. A. R., Yulistina, P. D., Dewi, P. S., Putra, P. A. S., ... & Yudha, G. K. E. (2023). Philosophy of Science on The Development of Palliative Nursing Practice in The Implementation of Long-Term Care for The Elderly: A Literature Review. Jurnal Info Kesehatan, 21(2), 226-238. https://doi.org/10.31965/infokes.Vol21.Iss2.1064

Alagizy, H. A., Soltan, M. R., Soliman, S. S., Hegazy, N. N., & Gohar, S. F. (2020). Anxiety, depression and perceived stress among breast cancer patients: single institute experience. Middle East Current Psychiatry, 27(1), 29. https://doi.org/10.1186/s43045-020-00036-x

Alligood, M. R. (2021). Nursing Theorists and Their Work. 10th Edition. Elsevier Inc.

Amalia, I. N., & Listia, M. (2020). Perawatan Paliatif terhadap Kualitas Hidup Pasien Kanker Payudara. Jurnal Keperawatan Silampari, 4(1), 281-292. https://doi.org/10.31539/jks.v4i1.1328

Anggorowati, A., & Ismail, S. (2023). Perawatan Spiritual pada Pasien Kanker Payudara. Jurnal Keperawatan Silampari, 6(2), 2024-2038. https://doi.org/10.31539/jks.v6i2.5150

Bouleuc, C., Burnod, A., Angellier, E., Massiani, M. A., Robin, M. L., Copel, L., Chvetzoff, G., Frasie, V., Fogliarini, A., & Vinant, P. (2019). Les soins palliatifs précoces et intégrés en oncologie [Early palliative care in oncology]. Bulletin du cancer, 106(9), 796–804. https://doi.org/10.1016/j.bulcan.2019.04.006

Curcio, F., El Khabir, H., Chelo, G., Puggioni, S., Soddu, M., Lucchetta, M. R., & Avilés-González, C. I. (2024). Transcultural Perspectives in Nursing: Understanding the Role of Healers and the Evil Eye in Modern Healthcare. Nurs Rep, 14(3), 2443-2455. https://doi.org/10.3390/nursrep14030181

Fatola, K. (2023). Culturally Sensitive Palliative Care and Beliefs about Dying [Internet]. Physiopedia. Retrieved from: https://www.physio-pedia.com/Culturally_Sensitive_Palliative_Care_and_Beliefs_about_Dying?veaction=edit

Flick, U. (2022). The SAGE Handbook of Qualitative Research Design. SAGE Publications Ltd. https://doi.org/10.4135/9781529770278

Forouzi, M. A., Tirgari, B., Safarizadeh, M. H., & Jahani, Y. (2017). Spiritual Needs and Quality of Life of Patients with Cancer. Indian J Palliat Care, 23(4), 437-444. https:doi.org/10.4103/ijpc.Ijpc_53_17

Gayatri, D., Efremov, L., Kantelhardt, E. J., & Mikolajczyk, R. (2021). Quality of life of cancer patients at palliative care units in developing countries: systematic review of the published literature. Qual Life Res, 30(2), 315-343. https://doi.org/10.1007/s11136-020-02633-z

Gouldthorpe, C., Power, J., Taylor, A., & Davies, A. (2023). Specialist Palliative Care for Patients with Cancer: More Than End-of-Life Care. Cancers, 15(14), 3551. https://doi.org/10.3390/cancers15143551

Hui, D., Heung, Y., & Bruera, E. (2022). Timely palliative care: personalizing the process of referral. Cancers, 14(4), 1047. https://doi.org/10.3390/cancers14041047

Hutajulu, S. H., Prabandari, Y. S., Bintoro, B. S., Wiranata, J. A., Widiastuti, M., Suryani, N. D., & Saptari, R. G. (2022). Delays in the presentation and diagnosis of women with breast cancer in Yogyakarta, Indonesia: A retrospective observational study. PLoS One, 17(1), e0262468. https://doi.org/10.1371/journal.pone.0262468

Jang, Y., & Jeong, Y. (2021). Unmet Needs and Quality of Life of Cancer Patients and Their Families: Actor-Partner Interdependence Modeling. Healthcare (Basel), 9(7), 874. https://doi.org/10.3390/healthcare9070874

Legese, B., Addissie, A., Gizaw, M., Tigneh, W., & Yilma, T. (2021). Information Needs of Breast Cancer Patients Attending Care at Tikur Anbessa Specialized Hospital: A Descriptive Study. Cancer Management and Research, 13, 277–286. https://doi.org/10.2147/CMAR.S264526

Lewandowska, A., Rudzki, G., Lewandowski, T., & Rudzki, S. (2021). The problems and needs of patients diagnosed with cancer and their caregivers. International journal of environmental research and public health, 18(1), 87. https://doi.org/10.3390/ijerph18010087

Lu, H., Xie, J., Gerido, L. H., Cheng, Y., Chen, Y., & Sun, L. (2020). Information needs of breast cancer patients: theory-generating meta-synthesis. Journal of medical Internet research, 22(7), e17907. https://doi.org/10.2196/17907

National Cancer Institute. (2025). Life After Cancer Treatment. National Cancer Institute. Retrieved from: https://www.cancer.gov/about-cancer/coping/survivorship/new-normal

Nuraini, T., Novieastari, E., & Yetti, K. (2019). Evaluation of nursing care behavior culture program’s implementation at Dharmais Cancer Hospital. ASEAN Journal of Community Engagement, 3(1), 51-71. https://doi.org/10.7454/ajce.v3i1.140

Praveena, K., & Sasikumar, S. (2021). Application of colaizzi’s method of data analysis in phenomenological research. Med Leg Updat, 21(2), 914-918. https://doi.org/10.37506/mlu.v21i2.2800

Rokom, R. (2024). Kanker Masih Membebani Dunia. Redaksi Sehat Negeriku. Retrieved from: https://sehatnegeriku.kemkes.go.id/baca/blog/20240506/3045408/kanker-masih-membebani-dunia/

Shah, S., Usman, A., Zaki, S., Qureshi, A., Lal, K., Uneeb, S. N., & Bari, N. (2023). The role of family and culture in the disclosure of bad news: A multicentre cross-sectional study in Pakistan. PEC Innovation, 3, 100200. https://doi.org/10.1016/j.pecinn.2023.100200

Sunilkumar, M. M., Finni, C. G., Lijimol, A. S., & Rajagopal, M. R. (2021). Health-Related Suffering and Palliative Care in Breast Cancer. Curr Breast Cancer Rep, 13(4), 241-246. https://doi.org/10.1007/s12609-021-00431-1

Surbakti, R. (2021). Peran perempuan sebagai anak, istri, dan ibu. Jurnal Kajian Gender dan Anak, 4(2), 123-136. https://doi.org/10.24952/gender.v4i2.3341

Symmons, S. M., Ryan, K., Aoun, S. M., Selman, L. E., Davies, A. N., Cornally, N., ... & Foley, G. (2023). Decision-making in palliative care: patient and family caregiver concordance and discordance—systematic review and narrative synthesis. BMJ supportive & palliative care, 13(4), 374-385. https://doi.org/10.1136/bmjspcare-2022-003525

Tampubolon, N. R., Fatimah, W. D., & Hidayati, A. U. N. (2021). Hambatan-Hambatan Implementasi Perawatan Paliatif di Indonesia: Systematic Review. Jurnal Kesehatan, 14(1), 1-10. https://doi.org/10.23917/jk.v14i1.12815

Tisnasari, I. A. M. A. S., Nuraini, T., & Afiyanti, Y. (2022). Stigma and discrimination against breast cancer survivors in Indonesia: an interpretive phenomenology study. Jurnal Ners, 17(2), 183-189. https://doi.org/10.20473/jn.v17i2.39448

Tisnasari, I., Nuraini, T., Afiyanti, Y., Rudi, R., & Maria, R. (2023). Psychological and sexual problems of cancer survivors. Archives of Italian Urology & Andrology/Archivio Italiano di Urologia Andrologia, 95(2), 98-107. https://doi.org/10.4081/aiua.2023.11473

Wahyuni, J. D., Yetti, K., Gayatri, D., Rachmawati, I. N., & Meidiawati, A. S. (2023). Komunikasi End of Life dengan Penyusunan Dokumen Wasiat Hidup: Qualitative Evidence Synthesis. Faletehan Health Journal, 10(03), 278-286. https://doi.org/10.33746/fhj.v10i03.640

Wang, Y., & Feng, W. (2022). Cancer-related psychosocial challenges. Gen Psychiatr, 35(5), e100871. https://doi.org/10.1136/gpsych-2022-100871

WHO. (2024). Breast Cancer. WHO. Retrieved from: https://www.who.int/news-room/fact-sheets/detail/breast-cancer

Zaccara, A. A. L., de Souza Batista, P. S., de Vasconcelos, M. F., de Oliveira Dias, K. C. C., de Aguiar, P. K. F., & da Costa, S. F. G. (2020). Contributions of the theory of the peaceful end of life to the nursing care for patients under palliative care/Contribuições da teoria final de vida pacífico para assistência de enfermagem ao paciente em cuidados paliativos. Revista de Pesquisa Cuidado é Fundamental Online, 12, 1247-1252. https://doi.org/10.9789/2175-5361.rpcfo.v12.9558

Zeilani, R. S., Abdalrahim, M. S., Hamash, K., & Albusoul, R. M. (2022). The experience of family support among patients newly diagnosed with cancer in Jordan. European Journal of Oncology Nursing, 60, 102173. https://doi.org/10.1016/j.ejon.2022.102173

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Published

2025-03-31

How to Cite

Sitorus, K., Novieastari, E., & Nuraini, T. (2025). Reaching the ’New Normal’: A Wish for Breast Cancer Patients in Palliative Care. JURNAL INFO KESEHATAN, 23(1), 38–50. https://doi.org/10.31965/infokes.Vol23.Iss1.1830

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