Maternal and Child Determinants of Psychological Well-Being in Mothers Caring for Children with Chronic Conditions
DOI:
https://doi.org/10.31965/infokes.Vol23.Iss2.1952Keywords:
Chronic Illness in Children, Maternal Psychological Well-being, Social Support, Maternal Characteristics, Caregiving ObstaclesAbstract
Caring for a child with a chronic condition imposes significant physical and psychological burdens on mothers, including increased stress, anxiety, depression, and difficulties balancing daily caregiving responsibilities with personal and social roles, which negatively impact their overall psychological well-being. This study aims to analyze the factors (maternal and child characteristics) associated with the psychological well-being of mothers who care for children with chronic conditions. A cross-sectional correlation design was used with 204 mothers of chronically ill children at Hospital in Malang City, selected through purposive sampling. The research instruments in this study are a questionnaire. Data analysis was performed using ordinal logistic regression. A p-value of less than 0.05 was considered statistically significant. Most mothers have moderate psychological well-being (72,1%). Multivariate analysis showed that mothers aged 26–35 years (OR = 0.113, p = 0.020), treatment duration under 1 year (OR = 5.551, p = 0.001), living in a village (OR = 0.221, p = 0.009), high family income (reference group, OR = 1.00), low obstacles to care (OR = 5.948, p = 0.009), good partner support (OR = 16.609, p = 0.002), good family support (OR = 6.062, p = 0.031), and good health worker support (OR = 6.965, p = 0.036) were significantly associated with increased maternal psychological well-being. Health workers can actively provide psychosocial support for mothers caring for children with chronic conditions, such as counseling. In addition, health workers must work with partners and families to create an emotionally supportive environment for mothers.
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References
Adedoyin, F. F., & Bekun, F. V. (2020). Modelling the interaction between tourism, energy consumption, pollutant emissions and urbanization: renewed evidence from panel VAR. Environmental Science and Pollution Research, 27(31), 38881–38900. https://doi.org/10.1007/s11356-020-09869-9
Ahmad, M., Sechi, C., & Vismara, L. (2024). Advanced Maternal Age: A Scoping Review about the Psychological Impact on Mothers, Infants, and Their Relationship. Behavioral Sciences, 14(3), 147. https://doi.org/10.3390/bs14030147
Aini, N., & Wahyu, A. C. (2020). The correlation between family support and psychological well-being in patients with end-stage renal disease. Journal of Nursing and Social Sciences Related to Health and Illness, 22(4), 291–296. https://doi.org/10.32725/kont.2020.041
Al Kahfi, R., Mahdiyah, D., & Susilawati, E. (2018). Hubungan Dukungan Keluarga Dengan Tingkat Kecemasan Pada Anak Penderita Kanker Yang Menjalani Kemoterapi Di Ruang Hemato-Onkologi Anak Rsud Ulin Banjarmasin. Dinamika Kesehatan, 9(1), 630–643. Retrieved from: https://ojs.dinamikakesehatan.unism.ac.id/index.php/dksm/article/view/310
An, J., Zhu, X., Shi, Z., & An, J. (2024). A serial mediating effect of perceived family support on psychological well-being. BMC Public Health, 24(1), 1–10. https://doi.org/10.1186/s12889-024-18476-z
Asmarani, F. F., & Sugiasih, I. (2020). Kesejahteraan Psikologis pada Ibu yang Memiliki Anak Tunagrahita Ditinjau dari Rasa Syukur dan Dukungan Sosial Suami. Psisula: Prosiding Berkala Psikologi, 1, 45–58. https://doi.org/10.30659/psisula.v1i0.7688
Baker, K., & Claridge, A. M. (2023). “I have a Ph.D. in my daughter”: Mother and Child Experiences of Living with Childhood Chronic Illness. Journal of Child and Family Studies, 32(9), 2625–2636. https://doi.org/10.1007/s10826-022-02506-8
Bamber, M. D., Mahony, H., & Spratling, R. (2023). Mothers of Children With Special Health Care Needs: Exploring Caregiver Burden, Quality of Life, and Resiliency. Journal of Pediatric Health Care, 37(6), 643–651. https://doi.org/10.1016/j.pedhc.2023.06.003
Bristow, S., Jackson, D., Shields, L., & Usher, K. (2018). The rural mother's experience of caring for a child with a chronic health condition: an integrative review. Journal of clinical nursing, 27(13-14), 2558-2568. https://doi.org/10.1111/jocn.14360
Castells-Quintana, D., Dienesch, E., & Krause, M. (2021). Air pollution in an urban world: A global view on density, cities and emissions. Ecological Economics, 189(April), 107153. https://doi.org/10.1016/j.ecolecon.2021.107153
Chow, A. J., Saad, A., Al‐Baldawi, Z., Iverson, R., Skidmore, B., Jordan, I., ... & Potter, B. K. (2024). Family‐centred care interventions for children with chronic conditions: A scoping review. Health Expectations, 27(1), e13897. https://doi.org/10.1111/hex.13897
Fairfax, A., Brehaut, J., Colman, I., Sikora, L., Kazakova, A., Chakraborty, P., & Potter, B. K. (2019). A systematic review of the association between coping strategies and quality of life among caregivers of children with chronic illness and/or disability. BMC Pediatrics, 19(1), 1–16. https://doi.org/10.1186/s12887-019-1587-3
Fisher, R. S., Sharp, K. M. H., Prussien, K. V., Himelhoch, A. C., Murphy, L. K., Rodriguez, E. M., Young-Saleme, T. K., Vannatta, K., Compas, B. E., & Gerhardt, C. A. (2021). Coping trajectories and the health-related quality of life of childhood cancer survivors. Journal of Pediatric Psychology, 46(8), 960–969. https://doi.org/10.1093/jpepsy/jsab017
Gharaibeh, H. F., & Gharaibeh, M. K. (2021). Quality of life of working and non-working Jordanian mothers caring for chronically ill child and its associated factors. Heliyon, 7(3), e06320. https://doi.org/10.1016/j.heliyon.2021.e06320
Hardy, R. Y., Boch, S. J., Davenport, M. A., Chavez, L. J., & Kelleher, K. J. (2024). Rural-urban differences in social and emotional protective factors and their association with child health and flourishing. Journal of Rural Health, 40(2), 314–325. https://doi.org/10.1111/jrh.12802
Hidayah, R., Yusuf, A., & Fitryasari, R. (2017). Coping Strategy Used by Parents of Children with Autism Spectrum Disorder (ASD). Ejournal UMM, 8(2), 165–174. Retrieved from: http://ejournal.umm.ac.id/index.php/keperawatan/issue/view
Kusnadi, S. K., Irmayanti, N., Anggoro, H., & Agustina, K. S. B. (2021). Hubungan Antara Dukungan Keluarga Dengan Psychological Well-Being Pada Orang Tua Yang Memiliki Anak Tunagrahita Sedang. Jurnal Psikologi Insight, 5(1), 79–86. https://doi.org/10.17509/insight.v5i1.34240
Leuwol, F. S., Ramdan Yusuf, Eko Wahyudi, & Nunung Suryana Jamin. (2023). Pengaruh Kualitas Lingkungan Terhadap Kesejahteraan Psikologis Individu di Kota Metropolitan. Jurnal Multidisiplin West Science, 2(08), 714–720. https://doi.org/10.58812/jmws.v2i08.592
Long, L., Ho, K., Ho, W., Li, C., Cheung, A. T., & Luo, Y. (2022). Impact of Poverty on Parent – Child Relationships , Parental Stress , and Parenting Practices. 10(April), 1–10. https://doi.org/10.3389/fpubh.2022.849408
Lopes, S., Lima, M., & Silva, K. (2020). Nature can get it out of your mind: The rumination reducing effects of contact with nature and the mediating role of awe and mood. Journal of Environmental Psychology, 71(June 2019), 101489. https://doi.org/10.1016/j.jenvp.2020.101489
Lubis, E, A., & Siregar, A.I.T. (2023). Tingkat Kecemasan Orang Tua Terhadap Anak Yang Menjalani Hospitalisasi Pada Anak Usia Toddler Di RU. Mekar RSUD Dr. RM Djoelham Binjai. BEST JOURNAL (Biology Education Science & Technology), 6(2), 394–400. Retrieved from: https://jurnal.uisu.ac.id/index.php/best/article/view/8002
Naziah, H. R., Sunarti, E., & Riany, Y. E. (2023). Pengaruh Manajemen Stres dan Status Pekerjaan Ibu terhadap Pengasuhan Anak Usia Sekolah saat Pandemi Covid-19. Jurnal Ilmu Keluarga Dan Konsumen, 16(1), 23–36. https://doi.org/10.24156/jikk.2023.16.1.23
Nur, A. M., Fitriah, A., & Marsha, G. C. (2024). Pengaruh Dukungan Tenaga Kesehatan Terhadap Psychological Well-Being Ibu Menyusui Di Wilayah Kerja Puskesmas Kayu Tangi. Jurnal Psikologi, 1(4), 23-23. https://doi.org/10.47134/pjp.v1i4.2825
Nurjanah, S., Septianingrum, Y., & Sari, R. Y. (2022). Family Life Experiences in Caring for Children with Leukemia: A Literature Review. Jurnal Aisyah : Jurnal Ilmu Kesehatan, 7(S2), 273–284. https://doi.org/10.30604/jika.v7is2.1439
Patel, V., Saxena, S., Lund, C., Thornicroft, G., Baingana, F., Bolton, P., Chisholm, D., Collins, P. Y., Cooper, J. L., Eaton, J., Herrman, H., Herzallah, M. M., Huang, Y., Jordans, M. J. D., Kleinman, A., Medina-Mora, M. E., Morgan, E., Niaz, U., Omigbodun, O., … UnÜtzer, Jü. (2018). The Lancet Commission on global mental health and sustainable development. The Lancet, 392(10157), 1553–1598. https://doi.org/10.1016/S0140-6736(18)31612-X
Piran, P., Khademi, Z., Tayari, N., & Mansouri, N. (2017). Caregiving burden of children with chronic diseases. Electronic Physician, 9(9), 5380–5387. https://doi.org/10.19082/5380
Pulungan, A. B., Fadiana, G., & Annisa, D. (2021). Type 1 diabetes mellitus in children: Experience in Indonesia. Clinical Pediatric Endocrinology, 30(1), 11–18. https://doi.org/10.1297/cpe.30.11
Puspitasari, F., & Haksama, S. (2020). Perbedaan Kesejahteraan Psikologis Pada Ibu Berdasarkan Struktur Keluarga Di Desa Kaligung Kabupaten Banyuwangi. Promotif : Jurnal Kesehatan Masyarakat, 10(2), 116–123. https://doi.org/10.56338/pjkm.v10i2.1039
Robertson, E. G., Kelada, L., Ilin, R., Palmer, E. E., Bye, A., Jaffe, A., ... & Wakefield, C. E. (2024). Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study. Journal of Child Health Care, 13674935241238485. https://doi.org/10.1177/13674935241238485
Rusu, P. P., Candel, O. S., Bogdan, I., Ilciuc, C., Ursu, A., & Podina, I. R. (2025). Parental Stress and Well-Being: A Meta-analysis. Clinical Child and Family Psychology Review, 0123456789. https://doi.org/10.1007/s10567-025-00515-9
Samuel, L. J., Abshire Saylor, M., Choe, M. Y., Smith Wright, R., Kim, B., Nkimbeng, M., Mena-Carrasco, F., Beak, J., & Szanton, S. L. (2025). Financial strain measures and associations with adult health: A systematic literature review. Social Science and Medicine, 364, 100337. https://doi.org/10.1016/j.socscimed.2024.117531
Sicca, S.P. (2025). Diabetes pada Anak di Indonesia Meningkat 70 Kali Lipat [Internet]. Diabetes Indonesia. Retrieved from: https://diabetes-indonesia.net/2023/02/diabetes-pada-anak-di-indonesia-meningkat-70-kali-lipat/
Silva, N., Pereira, M., Otto, C., Ravens-Sieberer, U., Canavarro, M. C., & Bullinger, M. (2019). Do 8- to 18-year-old children/adolescents with chronic physical health conditions have worse health-related quality of life than their healthy peers? a meta-analysis of studies using the KIDSCREEN questionnaires. Quality of Life Research, 28(7), 1725–1750. https://doi.org/10.1007/s11136-019-02189-7
Smith, S., Tallon, M., Clark, C., Jones, L., & Mörelius, E. (2022). “You Never Exhale Fully Because You’re Not Sure What’s NEXT”: Parents’ Experiences of Stress Caring for Children With Chronic Conditions. Frontiers in Pediatrics, 10(June), 1–12. https://doi.org/10.3389/fped.2022.902655
Spurr, S., Danford, C. A., Roberts, K. J., Sheppard-LeMoine, D., Machado Silva-Rodrigues, F., Darezzo Rodrigues Nunes, M., Darmofal, L., Ersig, A. L., Foster, M., Giambra, B., Lerret, S., Polfuss, M., Smith, L., & Somanadhan, S. (2023). Fathers’ Experiences of Caring for a Child with a Chronic Illness: A Systematic Review. Children, 10(2), 1–17. https://doi.org/10.3390/children10020197
Sumiati, N. T., Nufus, D. H., & Latifa, R. (2023). Resiliensi Orang Tua yang Memiliki Anak dengan Penyakit Kronis: Pengaruh Dukungan Sosial, Religiositas dan Faktor Demografi. Journal Psikogenesis, 10(1), 89–102. https://doi.org/10.24854/jps.v10i1.2849
Taverna, L., Bellavere, M., Tremolada, M., Santinelli, L., Rudelli, N., Mainardi, M., Onder, G., Putti, M. C., Biffi, A., & Tosetto, B. (2021). Oncological children and well-being: Occupational performance and hrqol change after fine motor skills stimulation activities. Pediatric Reports, 13(3), 383–400. https://doi.org/10.3390/PEDIATRIC13030046
Thomas, S., Ryan, N. P., Byrne, L. K., Hendrieckx, C., & White, V. (2024). Psychological Distress among Parents of Children with Chronic Health Conditions and Its Association with Unmet Supportive Care Needs and Children’s Quality of Life. Journal of Pediatric Psychology, 49(1), 45–55. https://doi.org/10.1093/jpepsy/jsad074
Trisyani, K., Fara, Y. D., & Mayasari, A. T. (2020). Hubungan faktor ibu dengan kejadian stunting. Jurnal Maternitas Aisyah (JAMAN AISYAH), 1(3), 189-197. Retrieved from: https://journal.aisyahuniversity.ac.id/index.php/Jaman/article/view/126
Ulyah, Q., Murwati, M., & Rossita, T. (2024). The Relationship between Child Hospitalization Duration and Parent Anxiety Level at Rs Tiara Sella Bengkulu City 2023. Student Scientific Journal, 2(1), 41-48. Retrieved from: https://jurnal.unived.ac.id/index.php/ssj/article/view/4841
Wang, Y., Qiu, Y., Ren, L., Jiang, H., Chen, M., & Dong, C. (2024). Social support, family resilience and psychological resilience among maintenance hemodialysis patients: a longitudinal study. BMC Psychiatry, 24(1), 1–12. https://doi.org/10.1186/s12888-024-05526-4
Werdani, Y. D. W., & Prasetiani, A. G. (2023). Empat Aspek Dukungan Keluarga Mampu Meningkatkan Motivasi Pengobatan Pasien Kanker Dalam Menjalani Kemoterapi Dan Radiasi Selama Pandemi Covid 19. Care: Jurnal Ilmiah Ilmu Kesehatan, 11(1), 11–23. Retrieved from: https://doi.org/10.33366/jc.v11i1.3259
Winarni, L. M., Arabela, S., Pratiwi, A., & Kusumastuti, N. A. (2024). Faktor-Faktor Yang Mempengaruhi Kesejahteraan Psikologis Pada Ibu Rumah Tangga Di Tangerang Tahun 2023. Binawan Student Journal, 6(2), 88–95. https://doi.org/10.54771/7xh6y661
Wong, C. R. (2023). Barriers to Care among Adults with Chronic Liver Disease in the United States. University of California, Los Angeles. Retrieved from: https://www.proquest.com/openview/b5b87ad2449251e5f7c9a8b29fc50ffd/1?pq-origsite=gscholar&cbl=18750&diss=y
Yayah, Y., & Wanda, D. (2021). Pengalaman Orangtua Selama Anak Dirawat dengan Penyakit Akut dan Kritis: Literature Review. Dunia Keperawatan: Jurnal Keperawatan Dan Kesehatan, 9(1), 93. https://doi.org/10.20527/dk.v9i1.9815
Yuliana, E., Murdiningsih, M., & Indriani, P. L. N. (2022). Hubungan Persepsi Ibu, Dukungan Suami, dan Dukungan Tenaga Kesehatan terhadap Pemberian Asi Ekslusif pada Ibu Menyusui di Wilayah Kerja Puskesmas Cahya Maju Lempuing Oki Tahun 2021. Jurnal Ilmiah Universitas Batanghari Jambi, 22(1), 614. https://doi.org/10.33087/jiubj.v22i1.1921
Zahl, E., Willemen, A. M., Fredriksen, T., Kirchhofer, S. M., Vatne, T. M., Orm, S., Botta, M., Prentice, C., & Fjermestad, K. W. (2024). Mental health in mothers and fathers of children with chronic disorders. PEC Innovation, 5, 100331. https://doi.org/10.1016/j.pecinn.2024.100331
Zannah, R., Fitriah, A., & Hariyono, D. S. (2024). Hubungan Dukungan Suami Terhadap Psychological Well-Being Ibu Menyusui Di Wilayah Kerja Puskesmas Kelayan Timur. Jurnal Riset Kesehatan Modern, 6(3), 242–259.
Zhang, C., Zhang, S., & Niu, Q. (2021). A new perspective of urban–rural differences: The impact of social support on the mental health of the older adults: A case from Shaanxi Province, China. Healthcare (Switzerland), 9(2), 112. https://doi.org/10.3390/healthcare9020112
Zonta, J. B., Okido, A. C. C., de Lima, B. J., Martins, B. A., Looman, W. S., Lopes-Júnior, L. C., ... & Lima, R. A. G. D. (2024). Stress in Family Caregivers of Children with Chronic Health Conditions: A Case–Control Study. Children, 11(11), 1347. https://doi.org/10.3390/children11111347
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